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December report #35

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merged 20 commits into from
Jan 31, 2024
Merged

December report #35

merged 20 commits into from
Jan 31, 2024

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harisood
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@harisood harisood commented Dec 13, 2023

Outstanding actions:

  • Add Zenodo link to slides
  • Add 'Our focus' link when that part of the site is updated

@harisood harisood requested review from manics and Davsarper December 18, 2023 17:27
@harisood
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@manics @Davsarper bar the links I think this is ready for review!


### Next steps

- Advocate for UK-TRE (or equivilant) should be lobbying 'up' to get standardised investment with an aim at reducing costs across the sector (not spliting funding across numerous initatives)
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Suggested change
- Advocate for UK-TRE (or equivilant) should be lobbying 'up' to get standardised investment with an aim at reducing costs across the sector (not spliting funding across numerous initatives)
- Advocate for UK-TRE (or equivalent) should be lobbying 'up' to get standardised investment with an aim at reducing costs across the sector (not spliting funding across numerous initatives)

- some curate + have technical environment for analysis
- NHS Research SDE Network - HDRI Gateway
- Challenges in federation, working across multiple TRE
- Direction of travel is that health data will exist in SDEs - policy will default to SDEs, but it ma
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what do we do with incomplete sentences in raw notes? copy paste as is and show why it is important to take good notes or...?

- SATRE Fundamental to day job of defining a federated architecture of TRE
- Pulled together driver projects to form architecture, SATRE forms part of that ongoing picture
- Third avenue is feeding into emerging working group at Research Data Alliance. See [Recent Plenary BoF session](https://www.rd-alliance.org/trusted-research-environments-sensitive-data-fairness-closed-data-and-processes) and [draft WG charter](https://docs.google.com/document/d/1877OtQyZ46QCHVZ8_1QqRgZJPXyImZdW1qYVyKItMSQ/edit).
- Great that SATRE invovled public, reflect this in the specification would be good for funding, and to highlight directly in the specifications where the project has reflected public/patient requests.
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- Great that SATRE invovled public, reflect this in the specification would be good for funding, and to highlight directly in the specifications where the project has reflected public/patient requests.
- Great that SATRE involved public, reflect this in the specification would be good for funding, and to highlight directly in the specifications where the project has reflected public/patient requests.


### Summary

This workshop introduced the idea of TREs within local council work, making specific reference to the London NHS SNSDE, and how Structurizr can be used for rendering C4 diagrams of data architecture.
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Is Structurizr known enough that is needs no explanaiton to distinguish its name from a typo?
Could add this link for clarity (if this is indeed the right thing) uk-tre/community-management#55

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I hadn't heard of it before. There are several other terms used in the notes (Snowflake, MVP, etc) which will be clear to some people but not others. I've just left them as is.

- Brief Introduction - subnational NHS SDE
- The importance of metadata architecture as a foundation to TRE
- Introduction to C4 model: https://c4model.com/
- X
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- X

- Introduction to C4 model: https://c4model.com/
- X
- TRE design in HDRC/ local authority:
- To comply with the data governance, the linked dataset (administrative and NHS data) needs to be stored in data haven that are accrediated.
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- To comply with the data governance, the linked dataset (administrative and NHS data) needs to be stored in data haven that are accrediated.
- To comply with the data governance, the linked dataset (administrative and NHS data) needs to be stored in data haven that are accredited.

- X
- TRE design in HDRC/ local authority:
- To comply with the data governance, the linked dataset (administrative and NHS data) needs to be stored in data haven that are accrediated.
- Such challenge in data storage and handling make it difficult to facilitate a collaborative research environment under the current data system.
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- Such challenge in data storage and handling make it difficult to facilitate a collaborative research environment under the current data system.
- Such challenges in data storage and handling make it difficult to facilitate a collaborative research environment under the current data system.

- TRE design in HDRC/ local authority:
- To comply with the data governance, the linked dataset (administrative and NHS data) needs to be stored in data haven that are accrediated.
- Such challenge in data storage and handling make it difficult to facilitate a collaborative research environment under the current data system.
- AS such, TRE provides a possible solution to offer a playground/ sandbox to allow researchers from council, community, academia and etc. to access and analyse the dataset.
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Suggested change
- AS such, TRE provides a possible solution to offer a playground/ sandbox to allow researchers from council, community, academia and etc. to access and analyse the dataset.
- As such, TRE provides a possible solution to offer a playground/ sandbox to allow researchers from council, community, academia etc. to access and analyse the dataset.

- Regional London SDE applies to governance on health data, especially for linking
- Subnational SDEs not quite ready for this type of research!
- Usefulness of Structurizr for rendering C4 diagrams of data architecture - as a text based modelling language, you can do your version control with git! - you can incorporate data models (Entity Relations) as images at the lowest "Code" level perspective of diagramming
11
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11


The talk then went into detail on the proposed work for the next 4 months.
This was based on the proposal submitted for the DARE UK Community groups funding.
More detail can be found in the [our focus section]()
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Where's this section?


### Next steps

- Propose a high-level federation WG (IG?) as an umbrella/place to start, using the UK TRE/DARE UK/RDA model
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I presume Rob will be the one to propose this, or at least will ne heavily involved, so I think we can discuss this separately


The talk then went into detail on the proposed work for the next 4 months.
This was based on the proposal submitted for the DARE UK Community groups funding.
More detail can be found in the [our focus section]()
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Suggested change
More detail can be found in the [our focus section]()

Shall we take this out, merge, and add it in later?

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I have suggested to just link to the full proposal

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Uploaded to Zenodo, pending approval, once I have that will update the link that is missing and slightly rephrase that sentence. Then approve? I think all other conversations are outdated or resolved no?

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manics commented Jan 30, 2024

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manics commented Jan 31, 2024

This is still marked as draft, what's left to do that can't wait?

@Davsarper
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With the updated link I think it is ready, admitedly lost track of some suggested changes but I think they are all applied. I would approve, merge, and if we spot anything fix in a new PR

@Davsarper Davsarper marked this pull request as ready for review January 31, 2024 11:58
@manics manics merged commit 5c05185 into main Jan 31, 2024
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@manics manics deleted the december-report branch January 31, 2024 12:01
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Davsarper commented Jan 31, 2024 via email

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3 participants